{"id":130,"date":"2019-04-09T12:46:19","date_gmt":"2019-04-09T12:46:19","guid":{"rendered":"https:\/\/cumcura.be\/?page_id=130"},"modified":"2023-11-12T10:11:46","modified_gmt":"2023-11-12T10:11:46","slug":"over-ons","status":"publish","type":"page","link":"https:\/\/cumcura.be\/en\/over-ons\/","title":{"rendered":"About us"},"content":{"rendered":"

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About us<\/h1>\n

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Who are we?<\/h2>\n

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Cum Cura is the umbrella patient organisation for people suffering from rare benign, locally aggressive and malignant bone and soft tissue tumors (such as sarcoma, desmoid, giant cell tumors, ...)<\/p>\n

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What are our goals?<\/h2>\n

[\/et_pb_text][et_pb_divider color=”#0c71c3″ divider_weight=”3px” _builder_version=”4.16″ max_width=”50px” custom_margin=”||0px” global_colors_info=”{}”][\/et_pb_divider][et_pb_text _builder_version=”4.16″ text_font=”||||||||” text_font_size=”15px” text_line_height=”2em” header_font=”||||||||” header_2_font=”|700|||||||” header_2_font_size=”32px” header_2_line_height=”1.6em” custom_margin=”10px||” animation_direction=”top” header_2_font_size_tablet=”” header_2_font_size_phone=”24px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}” text_font_size__hover=”14px” text_font_size__hover_enabled=”14px” text_line_height__hover=”1.7em” text_line_height__hover_enabled=”1.7em” text_letter_spacing__hover=”0px” text_letter_spacing__hover_enabled=”0px” text_text_shadow_style__hover=”none” text_text_shadow_style__hover_enabled=”none” text_text_shadow_color__hover=”rgba(0,0,0,0.4)” text_text_shadow_color__hover_enabled=”rgba(0,0,0,0.4)” link_font_size__hover=”14px” link_font_size__hover_enabled=”14px” link_letter_spacing__hover=”0px” link_letter_spacing__hover_enabled=”0px” link_line_height__hover=”1em” link_line_height__hover_enabled=”1em” link_text_shadow_style__hover=”none” link_text_shadow_style__hover_enabled=”none” link_text_shadow_color__hover=”rgba(0,0,0,0.4)” link_text_shadow_color__hover_enabled=”rgba(0,0,0,0.4)” ul_font_size__hover=”14px” ul_font_size__hover_enabled=”14px” ul_letter_spacing__hover=”0px” ul_letter_spacing__hover_enabled=”0px” ul_line_height__hover=”1em” ul_line_height__hover_enabled=”1em” ul_text_shadow_style__hover=”none” ul_text_shadow_style__hover_enabled=”none” ul_text_shadow_color__hover=”rgba(0,0,0,0.4)” ul_text_shadow_color__hover_enabled=”rgba(0,0,0,0.4)” ol_font_size__hover=”14px” ol_font_size__hover_enabled=”14px” ol_letter_spacing__hover=”0px” ol_letter_spacing__hover_enabled=”0px” ol_line_height__hover=”1em” ol_line_height__hover_enabled=”1em” ol_text_shadow_style__hover=”none” ol_text_shadow_style__hover_enabled=”none” ol_text_shadow_color__hover=”rgba(0,0,0,0.4)” ol_text_shadow_color__hover_enabled=”rgba(0,0,0,0.4)” quote_font_size__hover=”14px” quote_font_size__hover_enabled=”14px” quote_letter_spacing__hover=”0px” quote_letter_spacing__hover_enabled=”0px” quote_line_height__hover=”1em” quote_line_height__hover_enabled=”1em” quote_text_shadow_style__hover=”none” quote_text_shadow_style__hover_enabled=”none” quote_text_shadow_color__hover=”rgba(0,0,0,0.4)” quote_text_shadow_color__hover_enabled=”rgba(0,0,0,0.4)” text_orientation__hover=”left” text_orientation__hover_enabled=”left” background_layout__hover=”light” background_layout__hover_enabled=”light”]<\/p>\n

Our goal is creating a true approachable caring community for and by patients and their environment, a supportive community for better and for worse. The organization unites several patient-subgroups, among which Sarcoma Cum Cura, Desmoid Cum Cura and Giant Cell Tumors Cum Cura. There are general information platforms, and also platforms for each individual subgroup.<\/p>\n

Apart from offering information concerning these rare tumors, the organization also wishes to support three target audiences being patients, family\/loved ones and their (para)medical caregivers in order to facilitate peer support and to improve their quality of life. Scientific progress is closely followed up, translated and spread amongst our target audiences.<\/p>\n

In order to give our patients and their loved ones a voice towards the government, the VZW will chart the needs of our three target audiences, address and help solve bottlenecks. As these tumors are very rare, the VZW strives for generating public awareness to make the illness more visible and raise mutual understanding.<\/p>\n

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Whom do we collaborate with?<\/h2>\n

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Naturally the organization does not wish to operate alone, but we wish to collaborate closely with existing national and international patient organizations.<\/p>\n

Are you interested to become a partner? Please contact us using the contact page.<\/p>\n

 <\/p>\n

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What do we use our sponsoring for?<\/h2>\n

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Possible received sponsoring will be used to reach the aforementioned goals. It will be completely used for our target audiences, and will be used to organize activities and information rounds, supporting scientific research, ...<\/p>\n

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Over onsWie zijn wij?Cum Cura is de overkoepelende VZW voor pati\u00ebnten met zeldzame vormen van goedaardige, lokaal agressieve en kwaadaardige bot- en wekedelentumoren (bijvoorbeeld sarcoma, desmoid, reusceltumoren, …).Wat zijn onze doelstellingen?Onze doelstelling is het cre\u00ebren van een echte laagdrempelige zorgcommunity voor en door pati\u00ebnten en hun omgeving. Een community die steun biedt in goede en […]<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"footnotes":""},"class_list":["post-130","page","type-page","status-publish","hentry"],"yoast_head":"\nOver ons - Cum Cura<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cumcura.be\/en\/over-ons\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Over ons - Cum Cura\" \/>\n<meta property=\"og:description\" content=\"Over onsWie zijn wij?Cum Cura is de overkoepelende VZW voor pati\u00ebnten met zeldzame vormen van goedaardige, lokaal agressieve en kwaadaardige bot- en wekedelentumoren (bijvoorbeeld sarcoma, desmoid, reusceltumoren, ...).Wat zijn onze doelstellingen?Onze doelstelling is het cre\u00ebren van een echte laagdrempelige zorgcommunity voor en door pati\u00ebnten en hun omgeving. 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