{"id":130,"date":"2019-04-09T12:46:19","date_gmt":"2019-04-09T12:46:19","guid":{"rendered":"https:\/\/cumcura.be\/?page_id=130"},"modified":"2023-11-12T10:11:46","modified_gmt":"2023-11-12T10:11:46","slug":"over-ons","status":"publish","type":"page","link":"https:\/\/cumcura.be\/fr\/over-ons\/","title":{"rendered":"Notre histoire"},"content":{"rendered":"

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Notre histoire<\/h1>\n

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Qui sommes-nous?<\/h2>\n

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L\u2019asbl Cum Cura est une plateforme pour les patients atteints de tumeurs malignes des os et des tissus mous dont l'agressivit\u00e9 est locale (comme le sarcome, la tumeur desmo\u00efde, la tumeur \u00e0 cellules g\u00e9antes, ...).<\/p>\n

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Quels sont nos objectifs?<\/h2>\n

[\/et_pb_text][et_pb_divider color=”#0c71c3″ divider_weight=”3px” _builder_version=”4.16″ max_width=”50px” custom_margin=”||0px” global_colors_info=”{}”][\/et_pb_divider][et_pb_text _builder_version=”4.16″ text_font=”||||||||” text_font_size=”15px” text_line_height=”2em” header_font=”||||||||” header_2_font=”|700|||||||” header_2_font_size=”32px” header_2_line_height=”1.6em” custom_margin=”10px||” animation_direction=”top” header_2_font_size_tablet=”” header_2_font_size_phone=”24px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}” text_font_size__hover=”14px” text_font_size__hover_enabled=”14px” text_line_height__hover=”1.7em” text_line_height__hover_enabled=”1.7em” text_letter_spacing__hover=”0px” text_letter_spacing__hover_enabled=”0px” text_text_shadow_style__hover=”none” text_text_shadow_style__hover_enabled=”none” text_text_shadow_color__hover=”rgba(0,0,0,0.4)” text_text_shadow_color__hover_enabled=”rgba(0,0,0,0.4)” link_font_size__hover=”14px” link_font_size__hover_enabled=”14px” link_letter_spacing__hover=”0px” link_letter_spacing__hover_enabled=”0px” link_line_height__hover=”1em” link_line_height__hover_enabled=”1em” link_text_shadow_style__hover=”none” link_text_shadow_style__hover_enabled=”none” link_text_shadow_color__hover=”rgba(0,0,0,0.4)” link_text_shadow_color__hover_enabled=”rgba(0,0,0,0.4)” ul_font_size__hover=”14px” ul_font_size__hover_enabled=”14px” ul_letter_spacing__hover=”0px” ul_letter_spacing__hover_enabled=”0px” ul_line_height__hover=”1em” ul_line_height__hover_enabled=”1em” ul_text_shadow_style__hover=”none” ul_text_shadow_style__hover_enabled=”none” ul_text_shadow_color__hover=”rgba(0,0,0,0.4)” ul_text_shadow_color__hover_enabled=”rgba(0,0,0,0.4)” ol_font_size__hover=”14px” ol_font_size__hover_enabled=”14px” ol_letter_spacing__hover=”0px” ol_letter_spacing__hover_enabled=”0px” ol_line_height__hover=”1em” ol_line_height__hover_enabled=”1em” ol_text_shadow_style__hover=”none” ol_text_shadow_style__hover_enabled=”none” ol_text_shadow_color__hover=”rgba(0,0,0,0.4)” ol_text_shadow_color__hover_enabled=”rgba(0,0,0,0.4)” quote_font_size__hover=”14px” quote_font_size__hover_enabled=”14px” quote_letter_spacing__hover=”0px” quote_letter_spacing__hover_enabled=”0px” quote_line_height__hover=”1em” quote_line_height__hover_enabled=”1em” quote_text_shadow_style__hover=”none” quote_text_shadow_style__hover_enabled=”none” quote_text_shadow_color__hover=”rgba(0,0,0,0.4)” quote_text_shadow_color__hover_enabled=”rgba(0,0,0,0.4)” text_orientation__hover=”left” text_orientation__hover_enabled=”left” background_layout__hover=”light” background_layout__hover_enabled=”light”]<\/p>\n

Notre objectif est de cr\u00e9er une communaut\u00e9 de soins vraiment accessible pour et cr\u00e9\u00e9 par les patients et leurs proches. Une communaut\u00e9 qui offre du soutien pendant les bons et les moins bons moments. L\u2019association r\u00e9unit plusieurs sous- groupes de patients, dont Le sarcome Cum Cura, La tumeur desmo\u00efde Cum Cura et La tumeur \u00e0 cellules g\u00e9antes Cum Cura. Il y a des plateformes d\u2019information englobantes, ainsi que des plateformes sp\u00e9cifiques pour chaque sous-groupe.<\/p>\n

En plus de fournir des informations sur ces tumeurs rares, notre organisation souhaite \u00e9galement soutenir trois groupes cibles. Les patients, la famille\/les proches, et leurs fournisseurs de soins (para)m\u00e9dicaux afin de faciliter les contacts avec les pairs et d\u2019am\u00e9liorer la qualit\u00e9 de vie. En outre, les d\u00e9veloppements scientifiques sont suivis, traduits et distribu\u00e9s aux groupes cibles.<\/p>\n

Afin de donner une voix aux patients et leurs proches face aux d\u00e9cideurs politiques, l\u2019asbl Cum Cura mesurera les besoins de ces trois groupes cibles, proclamera les probl\u00e8mes primordiaux et aidera \u00e0 les r\u00e9soudre. Vu la raret\u00e9 des tumeurs,\nnotre organisation vise \u00e0 informer un large public afin de rendre les maladies visibles et d\u2019augmenter la compr\u00e9hension mutuelle.<\/p>\n

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Qui sont nos partenaires?<\/h2>\n

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Bien s\u00fbr que nous ne voulons pas op\u00e9rer tout seuls. Notre organisation vise \u00e0 travailler efficacement en collaboration avec les plateformes de patients existantes, nationales et internationales.<\/p>\n

D\u00e9sirez-vous devenir partenaire? N\u2019h\u00e9sitez pas de nous contacter via notre page de contact.<\/p>\n

 <\/p>\n

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\u00c0 quoi servira le parrainage?<\/h2>\n

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Tous les soutiens financiers re\u00e7us seront destin\u00e9s \u00e0 atteindre les objectifs susmentionn\u00e9s. Ils seront adress\u00e9s enti\u00e8rement \u00e0 nos groupes cibles et pourront \u00eatre utilis\u00e9s dans l\u2019organisation des activit\u00e9s ou soir\u00e9es d\u2019information et afin de soutenir la recherche scientifique.<\/p>\n

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Over onsWie zijn wij?Cum Cura is de overkoepelende VZW voor pati\u00ebnten met zeldzame vormen van goedaardige, lokaal agressieve en kwaadaardige bot- en wekedelentumoren (bijvoorbeeld sarcoma, desmoid, reusceltumoren, …).Wat zijn onze doelstellingen?Onze doelstelling is het cre\u00ebren van een echte laagdrempelige zorgcommunity voor en door pati\u00ebnten en hun omgeving. Een community die steun biedt in goede en […]<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"footnotes":""},"class_list":["post-130","page","type-page","status-publish","hentry"],"yoast_head":"\nOver ons - Cum Cura<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cumcura.be\/fr\/over-ons\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Over ons - Cum Cura\" \/>\n<meta property=\"og:description\" content=\"Over onsWie zijn wij?Cum Cura is de overkoepelende VZW voor pati\u00ebnten met zeldzame vormen van goedaardige, lokaal agressieve en kwaadaardige bot- en wekedelentumoren (bijvoorbeeld sarcoma, desmoid, reusceltumoren, ...).Wat zijn onze doelstellingen?Onze doelstelling is het cre\u00ebren van een echte laagdrempelige zorgcommunity voor en door pati\u00ebnten en hun omgeving. 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