Stories of survivors

Suddenly you receive an unexpected diagnosis and the world stands still for a moment. 
Below you will find some testimonies from survivors of Sarcoma or Desmoid about how they experienced it and how they deal with it.

 Would you like to get in touch with people in the same situation?

  • Come to the CumCura Day.

  • Request your free membership with a closed facebook group of survivors.

  • Contact us for an individual consultation

 If necessary, turn on subtitles at the bottom right of each video.

Desmoid – Mauro, student, 19 years

Osteosarcoma – Jonathan, student, 19 year

Sarcoma chordoma – Anke, teacher

Sarcoma pleiomorf – Martine, speech therapist

Desmoid fibromatose – Ingrid, physiotherapist

Sarcoma pleiomorf – Piet, writer and scientist

Sarcoma – Cathy

Sarcoma lipoom – Stefaan

Stories for children

HOPE – THE PODCAST

Warre Thomas, 

Warre was diagnosed with an aggressive, malignant bone tumor in 2022 (9 years) (ewing). A hellish and tough journey. Now he tells his story via a podcast and hopes to make the subject of childhood cancer more discussable.

This podcast is for the benefit of Children's Cancer Fund.

You can listen to the recording here .

Stories about living with cancer

Clear View on CANCER

Freya, has been living with cancer for 20 years..

Cancer turns your life upside down. Your head is full of questions, and medical terms are flying around your ears. Freya is a sarcoma patient and knows a lot about it. She's happy to be your guide and provides clear answers to your questions on Klare kijk op Kanker. No fuss, straightforward and clear.

For more information, click the following link.

Family stories of survivors

The book “Hippopotamus for Christmas”

The book “Hippopotamus for Christmas” is a biographical story of a father who writes about his son with bone cancer. This book does not avoid the difficult feelings of helplessness, frustration, anger. But throughout the story you will find the hope for a futureas a common thread. A book that a fellow sufferer can recognize themselves in.

The comforting hippo throughout the book Brul is called Brul. Brul is for sale as a cuddly toy in the webshop.