Welcome to Cum Cura’s Blog Page
Latest News & Insights
Welcome to our news page, where we share recent developments, inspiring testimonials, and relevant announcements from Cum Cura VZW. Stay informed about:
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- Announcements of meetings, webinars, and peer support days
- Information about ongoing projects and collaborations
- Practical tips for patients and healthcare providers
- Insights from our community
News from Cum Cura
Major breakthrough in the treatment of tenosynovial giant cell tumors (TGCT) in adults
Voor het eerst is er in Europa een medicijn goedgekeurd voor de behandeling van tenosynoviale reusceltumoren (TGCT) bij volwassenen. Het gaat om Vimseltinib (handelsnaam: Romvimza). Dit is een belangrijke doorbraak voor patiënten die tot nu toe bijna uitsluitend op chirurgie waren aangewezen.
Doctors find a “strange spot” on Fobe’s buttock
After a long and painful journey, Fobe (31) finally became a mother. But then doctors found a “strange spot” on her buttock:
“I could only think about Oke”
Major Breakthrough for Desmoid Tumor Patients in Europe
On August 18, 2025, the European Commission (EC) approved nirogacestat (OGSIVEO®) for adults with progressive desmoid tumors requiring systemic treatment.
Sarcoma Congress – Jules Bordet Institute
Cum Cura was present at the Sarcoma Congress at the Jules Bordet Institute.
Stronger Together: The Power of the Buddy System at Cum Cura
At Cum Cura, we believe in the power of connection. Our buddy system is a beautiful example of this: a network of peers with lived experience who are ready to offer a listening ear, recognition, and hope to others facing similar challenges.
PhD on Sarcoma – Suzanne Fischer
On June 3, Suzanne Fischer defended her PhD at Ghent University, titled:
“From biopsy to the bench and back: exploration of patient-derived tumour models and EV proteomic profiles to support therapeutic decision making for sarcoma patients.”
“From biopsy to the bench and back: exploration of patient-derived tumour models and EV proteomic profiles to support therapeutic decision making for sarcoma patients.”
New on the Cum Cura website
Steun
Steun Cum Cura VZW Maak het verschil voor mensen met zeldzame tumoren”Jouw bijdrage helpt ons om lotgenotente ondersteunen, te verbinden en te informerenWaarom doneren?Elke dag krijgen mensen in België een zeldzame tumor. Voor hen is er vaak weinig informatie, weinig...
The Buddy Program
Welcome to the Cum Cura Buddy System. You are not alone. At Cum Cura, we bring people together who truly understand each other. Our Buddy System is there for (former) patients or loved ones who need a listening ear, a shared story, or simply someone who knows what you’re going through...
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