Welcome to Cum Cura’s Blog Page
Latest News & Insights
Welcome to our news page, where we share recent developments, inspiring testimonials, and relevant announcements from Cum Cura VZW. Stay informed about:
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- Announcements of meetings, webinars, and peer support days
- Information about ongoing projects and collaborations
- Practical tips for patients and healthcare providers
- Insights from our community
News from Cum Cura
Hope that continues to grow, even after loss
Some stories stay with you. Not only because of the loss they carry, but especially because of what people choose to do afterwards.
New study arm in rEECur trial with Trabectedin for relapsed Ewing sarcoma
Ewing sarcoma, a rare bone and soft tissue cancer in children and young adults has poor outcomes at relapse. The drug trabectedin offers a hopeful new option for treatment.
Major breakthrough in the treatment of tenosynovial giant cell tumors (TGCT) in adults
For the first time in Europe, a medicine has been approved for the treatment of tenosynovial giant cell tumors (TGCT) in adults. It concerns Vimseltinib (trade name: Romvimza). This is a major breakthrough for patients who until now were almost exclusively dependent on surgery.
Doctors find a “strange spot” on Fobe’s buttock
After a long and painful journey, Fobe (31) finally became a mother. But then doctors found a “strange spot” on her buttock:
“I could only think about Oke”
Major Breakthrough for Desmoid Tumor Patients in Europe
On August 18, 2025, the European Commission (EC) approved nirogacestat (OGSIVEO®) for adults with progressive desmoid tumors requiring systemic treatment.
Sarcoma Congress – Jules Bordet Institute
Cum Cura was present at the Sarcoma Congress at the Jules Bordet Institute.
New on the Cum Cura website
Professional helplines
You are not alone in your search for answers. In addition to the power of peer support, there are professional helplines and services that offer (ex-)cancer patients and their loved ones free information, emotional support and guidance — from practical questions to psychological support.
Support Cum Cura VZW
Support Cum Cura VZW. Make the difference for people with rare tumors. Your contribution helps us to support, connect and inform fellow patients. Why donate? Every day, people in Belgium are diagnosed with a rare tumor. For them, there is often little information, little support, and even less research.
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