Stories of survivors
Suddenly you receive an unexpected diagnosis and the world stands still for a moment.
Below you will find some testimonies from survivors of Sarcoma or Desmoid about how they experienced it and how they deal with it.
Would you like to get in touch with people in the same situation?
- Come to the CumCura Day.
Request your free membership with a closed facebook group of survivors.
- Contact us for an individual consultation
Getuigenissen in beeld
Sarcoma bot
Bottumoren zijn er in verschillende vormen. In deze getuigenissen vertellen patiënten hun persoonlijke verhaal en geven ze een inkijk in hun ervaringen.
Bekijk de video’s en ontdek meer.
💬 Ondertiteling nodig? Je kan die rechtsonder in elke video inschakelen.
Sarcoma weke delen
Weke delen sarcomen bestaan in verschillende vormen en subtypes. Elke ervaring is uniek. In deze getuigenissen delen patiënten hun persoonlijke verhaal en vertellen ze over hun ervaringen met hun sarcoom.
Bekijk de video’s en ontdek een verhaal dat bij jou aansluit.
💬 Ondertiteling nodig? Je kan die rechtsonder in elke video inschakelen.
Desmoid Fibromatose
Elke ervaring met desmoïd-fibromatose is anders. De aandoening kan zich op verschillende manieren uiten en het verloop kan sterk verschillen van persoon tot persoon. In deze getuigenissen delen patiënten hun verhaal en vertellen ze hoe zij hiermee omgaan.
Luister naar hun verhalen en ontdek dat je niet alleen bent.
💬 Ondertiteling nodig? Je kan die rechtsonder in elke video inschakelen.
Getuigenissen in woord
Doctors find a “strange spot” on Fobe’s buttock
After a long and painful journey, Fobe (31) finally became a mother. But then doctors found a “strange spot” on her buttock:
“I could only think about Oke”
Stories for children
HOPE - DE PODCAST
Warre Thomas,
Warre was diagnosed with an aggressive, malignant bone tumor in 2022 (9 years) (ewing). A hellish and tough journey. Now he tells his story via a podcast and hopes to make the subject of childhood cancer more discussable.
This podcast is for the benefit of Children's Cancer Fund.
You can listen to the recording here .
Stories about living with cancer
Clear View on CANCER
Freya, has been living with cancer for 20 years..
Cancer turns your life upside down. Your head is full of questions, and medical terms are flying around your ears. Freya is a sarcoma patient and knows a lot about it. She's happy to be your guide and provides clear answers to your questions on Klare kijk op Kanker. No fuss, straightforward and clear.
For more information, click the following link.
Family stories of survivors
Boek "Nijlpaard voor Kerstmis"
The book “Hippopotamus for Christmas” is a biographical story of a father who writes about his son with bone cancer. This book does not avoid the difficult feelings of helplessness, frustration, anger. But throughout the story you will find the hope for a futureas a common thread. A book that a fellow sufferer can recognize themselves in.
The comforting hippo throughout the book Brul is called Brul. Brul is for sale as a cuddly toy in the webshop.
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