Stories of survivors
Suddenly you receive an unexpected diagnosis and the world stands still for a moment.
Below you will find some testimonies from survivors of Sarcoma or Desmoid about how they experienced it and how they deal with it.
Would you like to get in touch with people in the same situation?
- Come to the CumCura Day.
Request your free membership with a closed facebook group of survivors.
- Contact us for an individual consultation
Testimonials in pictures
Bone sarcoma
There are different types of bone tumors. In these testimonials, patients share their personal stories and offer insight into their experiences.
Watch the videos and discover more.
💬 Need subtitles? You can turn them on at the bottom right of each video.
Soft tissue sarcoma
Soft tissue sarcomas come in different forms and subtypes. Elke ervaring is uniek. In deze getuigenissen delen patiënten hun persoonlijke verhaal en vertellen ze over hun ervaringen met hun sarcoom.
Bekijk de video’s en ontdek een verhaal dat bij jou aansluit.
💬 Need subtitles? You can turn them on at the bottom right of each video.
Desmoid fibromatosis
Every experience with desmoid fibromatosis is different. The condition can present in different ways, and its course can vary greatly from person to person. In these testimonials, patients share their stories and explain how they live with the condition.
Listen to their stories and discover that you are not alone.
💬 Need subtitles? You can turn them on at the bottom right of each video.
Written testimonials
Doctors find a “strange spot” on Fobe’s buttock
After a long and painful journey, Fobe (31) finally became a mother. But then doctors found a “strange spot” on her buttock:
“I could only think about Oke”
For children
Hope - the podcast
Warre Thomas,
Warre was diagnosed with an aggressive, malignant bone tumor in 2022 (9 years) (ewing). A hellish and tough journey. Now he tells his story via a podcast and hopes to make the subject of childhood cancer more discussable.
This podcast is for the benefit of Children's Cancer Fund.
You can listen to the recording here .
Stories about living with cancer
Clear View on CANCER
Freya, has been living with cancer for 20 years..
Cancer turns your life upside down. Your head is full of questions, and medical terms are flying around your ears. Freya is a sarcoma patient and knows a lot about it. She's happy to be your guide and provides clear answers to your questions on Klare kijk op Kanker. No fuss, straightforward and clear.
For more information, click the following link.
Family stories of survivors
Book "Nijlpaard voor Kerstmis"
The book “Hippopotamus for Christmas” is a biographical story of a father who writes about his son with bone cancer. This book does not avoid the difficult feelings of helplessness, frustration, anger. But throughout the story you will find the hope for a futureas a common thread. A book that a fellow sufferer can recognize themselves in.
The comforting hippo throughout the book Brul is called Brul. Brul is for sale as a cuddly toy in the webshop.
NL 
FR 
EN